Additional Reading and Resources for Human Research

See the list of current publications and multi-media resources in the HARPO Reading Library 

 

Federal policies

Office for Human Research Protections (OHRP)

 

Federal Policy on Research Misconduct

NIH Revised Policy for IRB Review of Human Subjects Protocols in Grant Applications - dated 12/11/00

National Science Foundation's interpretation of the Federal Common Rule for the protection of human subject's for behavioral and social science research

 

HIPAA Privacy information - DHHS Office of Civil Rights

 

NIH information about the HIPAA Privacy Rule and Research

 

Links of Interest

Office for Human Research Protections (OHRP) sponsored workshops on responsibilities of researchers, Institutional Review Boards (IRBs), and institutional officials for the protection of human subjects in research.

Office for Human Research Protections (OHRP) LISTSERV to provide interested individuals with information regarding human subject research protection, and upcoming educational workshops and other programs - http://www.hhs.gov/ohrp/news/distributionlist.html

The IRB Forum (previously known as "MCWIRB") promotes the discussion of ethical, regulatory and policy concerns with human subjects research.

Ethical and Legal Aspects of Human Subjects Research in Cyberspace

Human Subject Regulations Decision Charts

Health Insurance Portability & Accountability Act of 1996 information from HIPAAdvisory.com

National Human Research Protections Advisory Committee (NHRPAC) - archived files only

 

Secretary's Advisory Committee on Human Research Protections (SACHRP) 

 

Office of Research Integrity supported conference/workshops

Best Practices for Survey and Public Opinion Research - offered by the American Association for Public Opinion Research

The National Human Genome Research Institute, Social and Behavioral Research Branch

 

Case example reading related to research integrity and human research protections  - The Case of Eric Poehlman via The Office of Research Integrity

 

The Belmont Report Historical Archive - includes  a short history of the Belmont Report and the current human subject protection regulations, as well as interviews with members, consultants and staff of the National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research

 

Professional Association Human Subject Information/Codes of Ethics

American Anthropological Association
American Association for Public Opinion Research
American Folklore Society
American Historical Association
American Political Science Association
American Psychological Association
American Sociological Association
American Speech-Language-Hearing Association
Applied Research Ethics National Association (ARENA)
Association of American Universities
Association for the Accreditation of Human Research Protection Programs (AAHRPP)
The Gerontological Society of America
The National Association of IRB Managers
National Association of Social Workers
National Association of the Practice of Anthropology
Public Responsibility in Medicine and Research (PRIM&R)
Oral History Association
Society for Research in Child Development

Last updated 03/07/2006